The Pink Agenda is providing the resources below for those interested in learning more about breast cancer, ovarian cancer and its relationship to breast cancer, other types of cancer, clinical trials, women’s health, and survivorship.
While we try to link only to websites of reputable organizations, please be aware that The Pink Agenda is not responsible for the privacy practices or the content of other websites. We encourage you to read the privacy statements provided by other websites before you provide personally identifiable information to them.
FOR MORE INFORMATION ABOUT BREAST CANCER:
ASCO Answers: The ASCO Cancer Foundation
ASCO Answers is a series of Fact Sheets produced and made available through The ASCO Cancer Foundation. As the philanthropic affiliate of the American Society of Clinical Oncology (ASCO), The ASCO Cancer Foundation funds research and education programs both in the U.S. and abroad. By harnessing the knowledge of more than 28,000 oncology professionals in the American Society of Clinical Oncology (ASCO), we help deliver physician-approved information directly to those in need. Through these efforts, we improve the lives of those affected by cancer.
National Cancer Institute’s Booklet: What You Need To Know About™ Breast Cancer
This National Cancer Institute (NCI) booklet is for women who have just been diagnosed with breast cancer. Learning about medical care for breast cancer can help you take an active part in making choices about your care. You can read this booklet from front to back. Or, you can read only the sections you need right now. This booklet has lists of questions that you may want to ask your doctor. Many people find it helpful to take a list of questions to a doctor visit. To help remember what your doctor says, you can take notes. You may also want to have a family member or friend go with you when you talk with the doctor – to take notes, ask questions, or just listen.
Breastcancer.org is a non-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. Its mission is to help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.
The Inflammatory Breast Cancer Research Foundation
The Inflammatory Breast Cancer Research Foundation is dedicated to the advancement of research of inflammatory breast cancer, leading to finding its causes and increasing the effectiveness of its treatment. Increasing awareness of IBC symptoms, leading to earlier and better clinical methods of detection and diagnosis is the other principal activity to which they are dedicated.
Living Beyond Breast Cancer
Living Beyond Breast Cancer (LBBC) is a national nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Founded in 1991, the organization offers resources, at low to no cost, that are designed for women who are at all stages of breast cancer. Programs and services such as three annual conferences, monthly community meetings and teleconferences, medically written publications, a toll-free Survivors’ Helpline, and outreach programs for women who are underserved reflect the most relevant and up-to-date sources for women seeking specialized and targeted information.
The Triple Negative Breast Cancer Foundation
The Triple Negative Breast Cancer Foundation (TNBC) was founded in 2006 to raise awareness of triple negative breast cancer and to support scientists and researchers in their efforts to determine the definitive causes of triple negative breast cancer, so that effective detection, diagnosis, prevention and treatment can be pursued and achieved. The TNBC Foundation website features include a helpline, clinical trial matching service, and discussion forum for triple negative breast cancer patients as well as their family and friends.
Young Survival Coalition
Young Survival Coalition is a volunteer network of young survivors whose mission is to bring attention to issues surrounding breast cancer in young women. New York Metropolitan area activities will seek to focus support and dollars on breast cancer research, technology, education, and outreach.
FOR MORE INFORMATION ABOUT OVARIAN CANCER AND ITS RELATIONSHIP TO BREAST CANCER:
The Ovarian Cancer National Alliance
The Ovarian Cancer National Alliance is the foremost advocate for women with ovarian cancer in the United States. To advance the interests of women with ovarian cancer, the Alliance advocates at a national level for increases in research funding for the development of an early detection test, improved health care practices, and life-saving treatment protocols. The Ovarian Cancer National Alliance educates health care professionals and raises public awareness of the risks and symptoms of ovarian cancer.
Project Hope for Ovarian Cancer and Education
Project Hope is committed to reducing the incidence of ovarian cancer and improve outcomes for women treated for it as a result of research and education. Project Hope advances this mission by educating women and their families about their individual risk of ovarian cancer and the specific screening and risk-reducing measures appropriate for them. It supports research directed at early detection, prevention, and more effective treatments for the illness. Project Hope has developed a risk assessment brochure and chart that are especially valuable for women who are at high risk of developing ovarian cancer, and that provide information about ovarian cancer symptoms, risk factors and what you can do to reduce your personal risk. The brochure and risk chart can be found at www.projecthopeforovariancancer.org.
FOR MORE INFORMATION ON ALL TYPES OF CANCER:
American Cancer Society
American Cancer Society is a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem, by saving lives and diminishing suffering through research, education, advocacy and service.
Cancer.Net (formerly People Living With Cancer) brings the expertise and resources of the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians, to people living with cancer and those who care for and care about them. All the information and content on Cancer.Net was developed and approved by the cancer doctors at ASCO, making Cancer.Net the most up-to-date and trusted resource for cancer information on the Internet. On the website you will find: cancer-specific sections, diagnosis and treatment, coping, survivorship, clinical trial information, and much more.
National Cancer Institute
National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI is the Federal Government’s principal agency for cancer research and training. The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
Coalition of National Cancer Cooperative Groups
National Cancer Cooperative Groups is a unique non-profit organization with one mission, improving patient awareness of cancer clinical trials, facilitating access, and promoting participation. Through innovative programs and services, the Coalition examines and confronts key issues impeding cancer research.
Clinical Trials Online
ClinicalTrials.gov offers up-to-date information for locating federally and privately supported clinical trials for a wide range of diseases and conditions. The site currently contains approximately 11,300 clinical studies sponsored by the National Institutes of Health, other federal agencies, and private industry. Studies listed in the database are conducted in all 50 States and in more than 90 countries.
EmergingMed provides a free and confidential matching service for people who are seeking clinical trials for which they may be eligible. There is a handy medical dictionary on the web site.
RESOURCES FOR FAMILIES WITH INHERITED PRE-DISPOSITION TO BREAST CANCER:
FORCE – Facing Our Risk of Cancer Empowered
FORCE’s is a non-profit devoted to hereditary breast and ovarian cancer. Its mission includes support, education, advocacy, awareness, and research specific to hereditary breast and ovarian cancer, and its programs serve anyone with a BRCA mutation or a family history of cancer.
Sharsheret is a national organization of cancer survivors dedicated to addressing the unique concerns of young Jewish women facing breast cancer. Sharsheret, Hebrew for “chain,” was founded in 2001 by Rochelle Shoretz, a former Law Clerk to United States Supreme Court Justice Ruth Bader Ginsburg, who recognized the need for a breast cancer organization that would provide culturally sensitive support for Jewish women after her own diagnosis at age 28. Since the organization’s founding, Sharsheret has responded to thousands of phone calls from health care professionals, Jewish organizations, women’s organizations, women affected by breast cancer, their families, and friends. Visit the Sharsheret blog.
FOR MORE INFORMATION ON WOMEN’S HEALTH/HEALTHY LIVING/DIET AND NUTRITION:
MayoClinic.com: Tools for Healthier Lives
MayoClinic.com is owned by Mayo Foundation for Medical Education and Research in Rochester, MN. Its mission is to empower people to manage their health by providing useful and up-to-date information and tools that reflect the expertise and standard of excellence of Mayo Clinic. The site gives access to the experience and knowledge of the more than 2,000 physicians and scientists of Mayo Clinic.
Memorial Sloan-Kettering Cancer Center: About Herbs, Botanicals and Other Products
MSK’s Integrative Medicine Service’s evidenced-based information on herbs, botanicals, vitamins, and other supplements. A consumer version of each monograph is available to help you deal with the often confusing claims made for over-the-counter products and regimens. It is important to ask your doctor or another qualified professional about possible interactions with your specific medications before taking any supplements.
National Breast and Cervical Cancer Early Detection Program
National Breast and Cervical Cancer Early Detection Program helps low-income women obtain access to mammography and other screening services. To date, 1.6 million women have been screened through the program. Age and income requirements vary.
National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led advocacy organization working on behalf of this country’s nearly 10 million cancer survivors and the millions more touched by this disease. Founded in 1986, NCCS continues to lead the cancer survivorship movement. By educating all those affected by cancer and speaking out on issues related to quality cancer care, NCCS endeavors to empower every survivor.
Get In Touch Foundation
Get In Touch Foundation is committed to encouraging women of all ages to “Get In Touch” with their bodies, be informed, and communicate with each other in the crusade against breast cancer. A cornerstone of this mission is the Get In Touch Girls Program, developed specifically for girls in grades 5-12 to educate them on the importance of, and how to do a breast self-exam.
RESOURCES FOR BREAST CANCER SURVIVORS:
The Advanced Breast Cancer Community Portal
The Advanced Breast Cancer Community Portal is a comprehensive information source and online community solely dedicated to the needs of advanced/metastatic breast cancer patients, caregivers, family and friends, and healthcare providers. Its goal is to empower patients with advanced/metastatic breast cancer to make the best personal decisions about their treatment and care, and connect them to others who may have similar health experiences through a safe, secure, privacy-protected site.